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1.)
Lorenzo Odone Memorial Walk
2.)
[firstname] [lastname], The Myelin Project Newsletter 20-Jun-08
3.)
Clinical trials of orphan medicines
4.)
Gene Therapy of Inherited Diseases
5.)
Empowerment of patients: Lessons from the rare disease community
6.)
Does orphan drug legislation really answer the needs of patients?
7.)
Why rare diseases are an important medical and social issue?
8.)
Alexander's Disease
9.)
Hematopoietic Cell Transplantation (HCT) for the Leukodystrophies: Cerebral X-linked Adrenoleukodystrophy (CALD), Globoid-Cell Leukodystrophy (GLD, Krabbe) and Metachromatic Leukodystrophy (MLD)
10.)
[firstname] [lastname], The Myelin Project Newsletter 31-May-08
11.)
New Class of Drugs for Treatment of Multiple Sclerosis
12.)
Rare Diseases What's next?
13.)
Making rare diseases a public-health and research priority
14.)
Zymenex gets FDA approval of Investigational New Drug
15.)
Metachromatic Leukodystrophy Clinical Trial
16.)
LORENZO ODONE PASSED AWAY MAY 30, 2008
17.)
New Class of Drugs for Treatment of Multiple Sclerosis
18.)
StopALD Foundation Funds Gene Therapy
19.)
NORTHWOOD SCHOOL STUDENTS RAISE MONEY FOR MYELIN DISEASE RESEARCH
20.)
Zymenex sells clinical candidate Metazym to Shire
21.)
Zymenex gets US Orphan Approval
22.)
Executive Director's Message
23.)
CURRENT GRANTS
24.)
NEWS
25.)
The Art of Fundraising
26.)
OTHER WAYS TO DONATE
27.)
28.)
29.)
Glossary
30.)
31.)
LORENZO ODONE
32.)
Lorem ipsum survey
33.)
OdoneFamily800
34.)
AO-LO-OH outdoors 2002-2-hi
35.)
LO 2002-hi
36.)
Augusto and Lorenzo 2002
37.)
AO-LO 2002-1-hi
38.)
IMAGE_043
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IMAGE_073-m
40.)
the swim
41.)
pledge
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